Support groups offer a multitude of benefits to families, including:
Emotional Support: Sharing experiences and coping strategies with others who understand the unique challenges of raising a child with a rare disease. Educational Resources: Access to up-to-date information on disease management, treatments, and research developments. Advocacy: Collective efforts to improve healthcare policies, increase funding for research, and raise public awareness. Financial Assistance: Information on grants, scholarships, and other financial resources to help cover medical expenses.
