Data collection in pediatric registries can occur through various methods:
Electronic Health Records (EHRs): Data can be extracted directly from EHRs, ensuring comprehensive and up-to-date information. Surveys and Questionnaires: These are often used to gather patient-reported outcomes and other subjective data. Manual Data Entry: In some cases, healthcare providers manually enter data into the registry. Administrative Data: This includes data from insurance claims, hospital discharge records, and other administrative sources.
