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crouzon syndrome
Are there any Support Resources?
Parents and caregivers can find support through various organizations and resources such as:
National Organization for Rare Disorders (NORD)
Craniofacial foundations
Genetic counselors
These resources can provide valuable information, support, and advocacy for families affected by Crouzon Syndrome.
Frequently asked queries:
What is Crouzon Syndrome?
How is it Inherited?
Are there any Support Resources?
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