When meeting with counselors, parents should consider asking the following questions to gain a comprehensive understanding of their child's condition and available support:
What is the specific diagnosis, and what are the implications for my child's health? What treatment options are available, and what are their potential risks and benefits? How can I best support my child's development and well-being? What resources are available to help us cope emotionally and financially? How can we prepare for potential future health issues related to this condition?
