RWE in neonatal care is primarily collected through multiple channels:
Electronic Health Records (EHRs): These records provide comprehensive data on patient demographics, diagnoses, treatments, and outcomes. Patient Registries: Specific registries for neonatal conditions help in tracking long-term outcomes and treatment efficacy. Insurance Claims Data: This can reveal patterns in healthcare utilization and associated costs. Patient-Reported Outcomes: Surveys and questionnaires filled out by parents or caregivers provide insights into the quality of life and satisfaction with care.
